Tag Archives: hEDS

It took 7 days

Before we get started here is some background information. I have finally been starting to get diagnosed, with the help of a private rheumatologist. This has yielded not only answers, that I have hEDS, fibromyalgia, and hypothyroidism, but also some relief thanks to medication (for the thyroid in particular). It’s that relief that I want to talk about today.


Today was that day. It wasn’t the 3rd day, where I finally had something tangible to compare how I was feeling to. Nor the 4th day where I again marveled at the idea that I could go through a day and do things without being too tired. Definitely not the 5th day, where this newfound energy allowed me to even consider the possibility to have an active social life again. And absolutely not the 6th day, where I was starting to get really excited about meeting new people.

No, it took 7 days, 4 if you account for the fact that it took 3 days for anything to happen in the first place.

It took 7 days for my body to play catch-up, with my new-found energy, which I will have you know, that I have not been pushing boundaries with.

It took 7 days, for my body to tell me FUCK YOU. Because I did small things like two machines of laundry, went out and sat in the sun for an hour with a new friend.

It took 7 days, for my body to completely reject the idea that having an energetic life again would be possible.

It took 7 days, for me to be reminded how precious this energy that’s returned to me is, and how well I need to take care of my body to continue living a life.

It took 7 days, for me to write a real blog post about a health update, as it required me to get hit back down on my ass.

It took 7 days, and even with the pain in every joint in my hand and fingers, I needed to share this experience with you.

It took 7 days, 4 days if you account for the first 3 days where I didn’t notice anything yet, for me to realize that having more energy isn’t necessarily a blessing.

It took 7 days, to be reminded that I have not been blessed with a miracle.

It took 7 days, for me to know that I am about to meet an entirely new life, and that I’ve merely just begun this journey.


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